Haemophilia is a genetic blood disorder that affects one in 5,500 people in Ireland. This disorder impairs body’s ability to make blood clots and stop bleeding.
Last Tuesday the 17th of April was World Haemophilia Day 2018, the Irish Haemophilia Society (IHS) celebrated both World Haemophilia day and there 50th anniversary with multiple events around the country.
The day began with myself (in the middle of the pic) and Brian O’Mahony (the CEO of the IHS) appearing on Ireland AM to speak about the development of Haemophilia care in Ireland over the last 50 years.
The celebrations continued with the revealing of a street art project reflecting the personal experience of patients and nurses from St James’s Hospital. The visual, commissioned by the Irish Haemophilia Society in partnership with Roche, was developed by artist Shane O’Malley and unveiled on Machen street and in St. James’s Hospital to coincide with World Haemophilia Week.
Brian O’Mahony and Dr. Michelle Lavin spoke at the Shire office about personalised treatment as well as the challenges that still need to be addressed to further our understanding of Haemophilia.
The Day concluded with the “light it up red” light show, a long list of landmarks including RCSI, Edinburgh castle and the convention Centre were among landmarks worldwide which were lit up red for the night.
Reported by Seamus McDonald